Category Archives: Blog
Ilan-a-thon 2016: Let the colors shine!
Ilan-a-thon is all about the colors! Well, not really, it’s all about the people, but...
Aug
More than a Race, Ilan-a-thon is a Celebration
Following June’s Ilan-a-thon Family 5k, a friend of Ilan and his family shared some thoughts...
Jul
Update from the Annual GFPD Scientific Advisory Meeting
The summer is off to a great start for the field of PBD-ZSD research! This...
A Community Rallies Around the Chapman Family
I attended the first annual Tee it Up for the GFPD in honor of two-year-old...
Grandmother Writes Book to Raise Awareness and Funds for the GFPD
Ann Duquette is a children’s book author, educator, dog lover and grandmother to Riley (age...
May
GFPD Partners to Fund Research at NCATS
The GFPD has partnered with the Wynne Mateffy Research Foundation to fund a research project...
#GFPDisFamily Video Premiers
Attendees at the Tee It Up For The GFPD reception and auction got a first...
May
GFPD Receives NORD Grant to Conduct Natural History Study
We are excited to announce that the GFPD has been awarded a grant to undertake...
Rare Disease Day Advocacy News
The last day of each February is World Rare Disease Day, a time to raise...
Wangler Lab at Baylor College of Medicine to focus on peroxisomal disease research
A huge congratulations to GFPD scientific adviser, Dr. Michael Wangler, who will be launching his...