Category Archives: Blog
A diagnostic odyssey | How does a patient receive a diagnosis of a peroxisomal disorder?
A patient with either type of peroxisomal disorder (peroxisomal biogenesis disorder or single enzyme protein...
Feb
Meet 2020 Patient Ambassador, Anna Violet
After following a year in the life of Archer in 2019, this year, we will...
Jan
Reflections on 2019 | Looking ahead to 2020
As 2019 draws to a close, I’m filled with gratitude for our past and present...
Dec
2019 Patient Ambassador – A year with Archer
It is hard to believe 2019 is coming to a close soon. As a new...
Dec
A bereaved mom’s thoughts on grief during the Holidays.
“Christmas is usually one of my favorite holidays. I am one of ‘those’ parents who...
Dec
Family is at the heart of the GFPD
“You may often hear or see the phrase “GFPD is family,” and I fully and...
Nov
PAUSE for PBD 2019! #PauseforPBD
Pause for PBD is officially one month away! Here’s 9 Ideas to celebrate the GFPD’s...
Sep
Patient Ambassador Archer – DEXA Bone Scan 2019
Ashley, mom of 2019 Patient Ambassador Archer, shares their family’s experience of taking Archer...
The Siblings’ Perspective – Life with GFPD Patient Ambassador Archer
A few thoughts from Ashley, Archer’s Mom: I have to say I think Archer is...
Apr
MISSION HIGHLIGHT | Equipment Exchange
The GFPD matches families who have medical or therapeutic equipment they are no longer using...
Mar