Category Archives: Blog
Study finds low bone mineral density common in PBD-ZSD patients
Dr. Eric Rush, of University of Nebraska Medical Center, and who is a member of...
The GFPD in 2016: Looking Ahead to the Year of the Peroxisome
The New Year is here and we at the GFPD have hit the ground running,...
PBD-ZSD Treatment Guidelines published in collaboration with GFPD
In a years-long effort, GFPD Family and Scientific Liaison Dr. Mousumi Bose has headed up...
Family Dinner Dance Fundraiser Grows in its Third Year
Carolina and Jose Alfaro recently celebrated the lives of their children with their third Dinner...
Dec
GFPD Fall 2015 e-Newsletter
The Fall 2015 e-Newsletter has been released and features stories about all the work our...
Schumacher Group Comes Together to Celebrate Ginny Gamble
Contributed by Jennifer Hazard of Cute Potato When communities work together to support one...
Nov
Family Fundraising Video Raises Big Money for GFPD
When Max was diagnosed with PBD, my husband and I were devastated to learn that...
GFPD Co-Founder Discusses Her “Long Search” for Diagnosis
GFPD Co-Founder Melissa Gamble recently shared the story of her daughter Ginny’s birth and their...
Nov
PBD families meet up in the UK
In September, our UK families got together for their very first PBD family meet up,...
Oct
Dr. Joseph Hacia Creates Mosaic for GFPD Kids
We absolutely LOVE this beautiful image, created by GFPD Scientific Advisory Board member Dr. Joseph...
Sep