Category Archives: News
Rare Disease Day
Do you have your colorful stripes ready?! Rare Disease Day is February 28th! For 14...
Feb
GFPD Supports Legislation for Newborn Screening in Iowa
HSB 690 /SSB 3122 both passed out of their respective committees in the Iowa State...
Feb
The GFPD Supports North Carolina HB 736
https://everylifefoundation.org/voter-voice/?vvsrc=%2fcampaigns%2f80975%2frespond
May
The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
Over the past year, millions of family caregivers found themselves needing to isolate or take...
Apr
The GFPD advocates for Paid Leave for Family Caregivers Across the Lifespan
Over the past year, millions of family caregivers found themselves needing to isolate or take...
The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
Mar
The GFPD (along with hundreds of other U.S. nonprofits) advocates for additional 2021 COVID relief, led by the National Council of Nonprofits.
At this time of a worldwide pandemic, economic uncertainty, and national turmoil, there can be...
The GFPD joins with the TS Alliance to Advocate for Prioritization of Individuals with Rare Diseases and their Caregivers to have Immediate access to COVID-19 Vaccines.
On February 12, 2021, the GFPD joined with the TS Alliance and 69 other advocacy...
UNMC researcher heads $3.3 million national study
Dr. Rizzo said several of the diseases are so rare that between 500 and 1,000...
Feb