Category Archives: News
Pause for PBD
Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...
Feb
Jersey County Journal – Letter to Editor for Pause for PBD
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...
Feb
A walk for a child with a rare disease in Saint-Quentin
Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...
Feb
This unicorn wheelchair costume is truly magical
She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...
Feb
NJ mom to run Philly marathon to bring attention to rare disease
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
Feb
Family makes every moment count with terminal son
Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...
Feb
Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’
Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...
Feb
Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!
Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...
Feb
Newsmaker: Tulsa-based Peroxisomal foundation names director, board
The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...
Feb
Peoria family promotes Rare Diseases Day for 7-year-old son
It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...
Feb