Category Archives: News
Jersey County Journal – Letter to Editor for Pause for PBD
The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...
Feb
A walk for a child with a rare disease in Saint-Quentin
Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...
Feb
This unicorn wheelchair costume is truly magical
She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...
Feb
NJ mom to run Philly marathon to bring attention to rare disease
De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...
Feb
Family makes every moment count with terminal son
Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...
Feb
Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’
Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...
Feb
Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!
Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...
Feb
Newsmaker: Tulsa-based Peroxisomal foundation names director, board
The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...
Feb
Peoria family promotes Rare Diseases Day for 7-year-old son
It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...
Feb
Health on Earth Episode featuring Christine Yergeau of McGill University
McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...
Feb