Category Archives: News

Pause for PBD

Melissa Bryce Gamble shares the story of her daughter Ginny's battle with a peroxisome biogenesis...

Jersey County Journal – Letter to Editor for Pause for PBD

The Jersey County Journal featured a letter to the editor, from Vicky Maag, about our...

A walk for a child with a rare disease in Saint-Quentin

Thomas Thériault, of Saint-Quentin, will celebrate his second birthday on November 24. His community recently...

This unicorn wheelchair costume is truly magical

She's five-years-old, loves all things pink and glitter, and will be sporting a pretty magical...

NJ mom to run Philly marathon to bring attention to rare disease

De Jesus says that it was a specialist in Canada who diagnosed Jaxson with Peroxisomal...

Family makes every moment count with terminal son

Jaxon’s health has had a backslide lately. The hospice nurses hope he will make it...

Texas Parents Calm Baby with Kisses Before Learning He’s Blind: ‘We Didn’t Know What Was Wrong’

Gideon Jolicoeur, 4, was born with a rare condition that impacts his hearing and eyesight...

Champion of the 2017 AmorChem KNOCK OUT event: Team Braverman!

Dr. Braverman’s work focuses on genes responsible for the proper function of peroxisomes, which are...

Newsmaker: Tulsa-based Peroxisomal foundation names director, board

The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...

Peoria family promotes Rare Diseases Day for 7-year-old son

It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...