Category Archives: News
Newsmaker: Tulsa-based Peroxisomal foundation names director, board
The Tulsa-based Global Foundation for Peroxisomal Disorders has named Melissa Bryce Gamble as its first...
Feb
Peoria family promotes Rare Diseases Day for 7-year-old son
It was a horrible diagnosis, but looking back, Pamela Marshall is thankful her son Ethan...
Feb
Health on Earth Episode featuring Christine Yergeau of McGill University
McGill graduate, Christine Yergeau sat down with CKUT’s Health on Earth Podcast to discuss peroxisomal...
Feb
Kick It For Max
Kick It For Max A local high school soccer team is helping their coach’s family.
Feb
Running for Riley Fun Run/Walk is another great race for a great cause
Riley grew up playing at White Park, ringing the chimes and riding the swings, so...
Feb
Bloomington’s Harmony Park will be a place for every kid to play
Four nonprofits partner to develop inclusive playground
Feb
Letter to the Editor: Do an act of kindness to mark Pause for PBD
Peroxisomal Biogenesis Disorder (also known as Zellweger Spectrum Disorder), is a rare, genetic, condition affecting...
Gainesville parents raise awareness of rare disorder, PBD, which claimed daughter’s life
To remember their daughter and help other families who are in a similar situation, Christopher...
#PauseForPBD: A SLU Doctoral Student Shares His Son’s Journey
PBD-ZSD affects approximately one in 50,000 live births and while the exact number of individuals...