Category Archives: Blog
NYT Article Highlights Dr. Braverman's Work on Peroxisomal Disorders
This article in today’s New York Times tells a familiar story about families seeking treatment...
A New Look at PBD-ZSD Patients Living into Adulthood
A newly published article in the Journal of Metabolic Disease describes a “distinct subgroup within...
Raise Awareness when you #PAUSEforPBD on October 5th
Once again, we will be commemorating the GFPD’s birthday on October 5th by inviting our...
Riley Brown named Cutest Baby by Otago Daily Times
Six month old Riley Brown, who has PBD-ZSD, was named “Cutest Baby” in a contest...
July 30th Proclaimed Zellweger Disorder Awareness Day in Indiana
We are very moved today at the news that Levi Mayhew’s family, in a time...
Jul
Ilan-a-thon 5k 2015 Goes Virtual
We’re really pleased to announce that this year’s Ilan-a-thon 5k is a virtual event that...
2015 GFPD Dinner Dance in Honor of Adrian and Diego Alfaro Planned
Planning for the 2015 Dinner Dance benefiting the GFPD and honoring the memories of Adrian...
Jul
Novo Nordisk Nebraska Supports GFPD
A beautiful balloon launch with the Novo Nordisk Nebraska Districts. Thank you for your support...
Pound the Pavement for Peter 2015
Pound the Pavement for Peter is a Family 5K Run in Atlanta that was started...
GFPD Make-a-Wish Kid Donates Wish
Levi, a boy with PBD who is not well enough to travel for his Make-a-Wish...